Epilepsy mistakes I wish I was warned about

When you get diagnosed with a confusing chronic condition as a teenager, you're bound to make some mistakes...

I've learnt the hard way with all of these!

Wasted time, energy, and worst of all...

Seizures.

The pic is a re-enactment of me pretending I'm innocent when my mum asked me if I'd been following the rules and not pushing my limits lol.

I was uneducated about epilepsy when I was diagnosed.

These are the mistakes I made and how I’d avoid them.

One I didn’t tell anyone I had epilepsy looking back on this now I realise how much danger this caused.

It meant that friends, colleagues, plane staff had no idea what to do if I had a seizure.

Now: I tell people about epilepsy and share my care plan!!

Two I ignored my triggers and pushed myself too far.

I didn’t want to admit how much stress, sleep deprivation affected me.

My triggers compounded over time and inevitably resulted in a seizure...

Now: I pay close attention and make better choices to avoid risk.

Three I drank alcohol even though it was a seizure trigger I let the social pressure get to me rather than thinking about how dangerous this was.

For me, alcohol isn’t a trigger in isolation, but when mixed with sleep deprivation etc., it made me vulnerable.

Now: I avoid alcohol completely, because it’s not worth the risk.

Four I didn’t come prepared with a list of questions or my medical documents this wasted time and energy and meant I’d leave the appointment without the answers I was searching for.

Now: I’d do my research, be prepared with a seizure diary and my questions.

Five I left the house unprepared there were more times than I can count where I’d left the house without meds.

The lack of prep was risky but it also impacted my social life when I had to go home early or felt “seizure-y”.

Now: I always carry meds, water, and appropriate snacks you don't have to learn everything the hard way.

Sharing this could help someone who’s newly diagnosed or needs advice.